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ETHICS & REGULATORY GOVERNANCE

Research done right: ethics, data and accountability

Our studies run under institutional ethics oversight, national regulatory approval and data-protection standards that funders and communities can verify.

A community health session held under a tree
Ethics & regulatory approvals

Institutional review and national clearance

  • Institutional ethics committee (IRB) clearances

    Every protocol is reviewed by an accredited research ethics committee before enrolment begins.

    To be published

  • National research registration

    Studies are registered with the national research regulator as required for health research in Uganda.

    To be published

  • Material transfer agreements (MTAs)

    Biological samples leave a site only under a signed MTA that protects participants and the communities they come from.

    To be published

Data protection

Data management standards

  • Uganda Data Protection and Privacy Act, 2019. Personal and health data are processed in line with national law.
  • GDPR-aligned practice. For partners in the EU, we follow equivalent standards on consent, minimisation and access.
  • Consent and confidentiality. Informed consent before data collection; participant identities are separated from research datasets.

Read our privacy policy

Grants & compliance

Financial accountability

  • Sub-grant management. Clear sub-award agreements, budgets and reporting lines.
  • Financial reporting. Restricted funds tracked separately and reported to each funder.
  • Registered NGO. National Bureau for Non-Governmental Organisations, March 2026.

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